Articles on Participatory Research relating to disability

• Hartman, A., DePoy, E., , Francis, C. and Gilmer, D. (2000) Adolescents with special health care needs in transition: Three life histories. Social Work &Health Care, 31,4,3-58.
• DePoy, E. & Gilmer, D. (2000) Adolescents with disabilities and chronic illness in transition: a community action needs assessment. Disability Studies Quarterly, Spring, 2000.
• Gilson, S. F., Bricout, J. C., & Baskind, F. R. (1998). Listening to the voices of individuals with disabilities. Families in Society, 79(2), 188-196. Social work literature, research, and practice on disabilities has lagged behind other topical areas dealing with oppressed groups. The social work literature remains "expert focused" and generally fragmented into discussions of specific disabilities or subpopulations. A viable general model that deals with the personal experience of disability is not available. This exploratory study presents a social work literature search and analysis as well as interviews with six individuals with disabilities about their experiences with social workers and provides a base for follow-up research on models of consumer-focused social work practice in the area of disability. (Journal abstract.)(edited)
• Cook, P., Cook, M., Tran, L., & Tu, W. (1997). Children enabling change: a multicultural, participatory, community-based rehabilitation research project involving Chinese children with disabilities and their families. Chil and Youth Care Forum, 26(3), 205-219. A participatory, action-oriented research approach was used in developing community-based services for children with disabilities in an urban Chinese community. The findings of the research are discussed with the aim of building on community strengths to reinforce existing family support programs and involve families and children with a disability in such processes in a culturally appropriate manner.
• Beaulaurier, R. L., & Taylor, S. H. (1999). Self-determination and consumer control: Guiding principles in the empowerment model as utilized by the disability rights movement. In W. Shera & L. Wells (Eds.), Empowerment practice: Developing richer conceptual foundations (pp. 159-177). Toronto: Canadian Scholars Press.
• Balcazar, F. E., Keys, C. B., Kaplan, D. L., & Suarez-Balcazar, Y. (1998). Participatory action research and people with disabilities: Principles and challenges. Canadian Journal of Rehabilitation, 12(2), 105-112.
• Barnes, C., & Mercer, G. (Eds.). (1997). Doing disability research (pp. 1-14). Leeds: The Disability Press, University of Leeds. 
• DisAbled Women's Network (DAWN) Canada (1991). Research guidelines. Brandon, Manitoba: Author.
• Felske, A. W. (1991). Research By/For/With Women with Disabilities. North York, Ontario: Roeher Institute.
• French, S. (1994). Researching disability.  In S. French (Ed.), On Equal Terms: Working with Disabled People (pp. 136-147).  Oxford: Butterworth-Heinemann.
• Lloyd, M., Preston-Shoot, M., Temple, B., with Wuu, R. (1996). Whose project is it anyway? Sharing and shaping the research and development agenda. Disability and Society, 11(3), 301-315.
• Oliver, M. (1992). Changing the social relations of research production. Disability, Handicap and Society, 7(2), 101-114.
• Rioux, M. H. & Bach, M. (Eds.). (1994). Disability is not measles: New research paradigms in disability. North York, Ontario: Roeher Institute.
• Tewey, B. (1997). Building participatory action research partnerships in disability and rehabilitation research. Washington, DC: The National Institute on Disability and Rehabilitation Research.
• Woodill, G. (1992). Independent living and participation in research: A critical analysis. Discussion paper.  Toronto: Center for Independent Living.
• Zarb, G. (1992). On the road to Damascus: First steps towards changing the relations of disability research production. Disability, Handicap and Society, 7(2), 125-138.
• Some good authors to search: Mike Oliver, Gery Zarb, Colin Barnes.
• Knox, M. & Hickson, F. (2001).  The meaning of close friendships: the views of four people with intellectual disability.  Journal of Applied Research in Intellectual Disabilities, Vol. 14, pp. 276-291.  [NB: Marie Knox has done a quite a bit of work in area of participatory research - she is Senior Lecturer in the School of Human Services, Queensland University of Technology, Beams Road, Carseldine, Queensland, Australia, 4034; m.knox@qut.edu.au ]
• Mactavish, J., Mahon, M. & Lutfiyya, Z. (2000).  I can speak for myself: involving individuals with intellectual disabilities as research participants.  Mental Retardation, Vol. 38, pp. 216-227.